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It's a sweet adventure full of gluten free goodies!

Candy Hearts Blog - It's a sweet adventure full of gluten free goodies!

BIONIC: 9th Diaversary

On July 25, 2005, I sat in an ICU listening to machines beeping and buzzing while watching my unresponsive baby lying in a hospital crib. Her face was puffy and her eyes were swollen closed. Aside from breathing, she didn’t move very much.

The world hustled in to silence her alarms and prick her toes for blood drops every 30 minutes. They would come around again to draw arterial blood samples or attempt to restart a failed IV. All the while, I sat there, wondering how I would be able to keep her alive without a team of nurses and doctors waiting just outside the door.

She had three IVs in place: 1 for an insulin drip, 1 for a dextrose drip, and an extra for lab draws.

Poke – Beep – Push Buttons.

Insulin up.

Dextrose Down.

Insulin down.

Dextrose up.

And so it continued…poke – beep – push buttons…poke – beep – push buttons…for the better part of 2 days. It was a delicate dance between an IV drip of insulin and an IV drip of glucose.

I will never forget the doctor’s words to me that night:

“This was the last day of your daughter’s life. If you had not gotten help when you did, you would have put her to bed and she would have been gone by morning…”

I don’t remember much else about our conversation after hearing those words. He said the road ahead would be tedious. Frustrating. Exhausting. He told me this race would be a marathon, not a sprint.

He also told me we had won our first victory, simply because she was alive.

We came so close.

On July 25, 2014, my daughter sleeps in a cabin at diabetes camp. There are still people who sneak in during the night to poke her fingertips for drops of blood. Once again, there’s a team of nurses and doctors waiting just outside the door.

Soon, she will trial the Bionic Pancreas: a continuous infusion of insulin and glucagon…and the dance will begin again.

We’ve come a long way in the last nine years. I’m excited to see where the next nine takes us.

BP 1

There is HOPE.

This post is part of a series documenting Sugar’s experience in the 2014 Bionic Pancreas Summer Camp Study.

Further Reading:
Category: bionic pancreas
  • Michelle S. says:

    Difficult to type this with tears clouding my eyes. So beautifully written and so close to home. We were much older at diagnosis but your words brought me right back to our diagnosis day. It’s a feeling no parent of a T1D will ever forget. Happy diaversary!

    July 26, 2014 at 6:21 am
  • Sara says:

    Happy Diaversary Sugar!

    I am so happy to know you and your family! I can’t wait to hear about your adventures this summer.

    July 26, 2014 at 7:32 pm
  • Misty says:

    Every single diagnosis story makes me cry. I love your analogy of her insulin and dextrose drips from diagnosis being much like the two pumps (insulin and glucagon) in the bionic pancreas system that she is wearing today!! I am so thankful that you won that “first victory”! Looking forward to celebrating many more victories with you <3

    July 27, 2014 at 4:24 pm

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