Candy Hearts Blog

It's a sweet adventure full of gluten free goodies!

Candy Hearts Blog - It's a sweet adventure full of gluten free goodies!

Dear Pediatricians. And Family Practice Doctors. And ER Doctors.

And every other kind of doctor, for that matter.

Dear Med Students.  And Nursing Students.

Dear Nurses. And EMTs. And Paramedics.

DEAR EVERYONE,

I’d like to introduce you to Addie.

I’m quite sure her bright smile and big blue eyes will reach inside soul and melt your candy heart…

Addison Parker

Addie was diagnosed with Type 1 Diabetes on August 12, 2011.

She was 4 years old.

She died on August 18, 2011.

Addie did not survive her diagnosis.

I wish I could say that Addie’s story is rare, but it happens far more often than people might think. This study suggests that about 1/3 of people who died from complications of Diabetic Ketoacidocis (over a six year period in Maryland) had not previously been diagnosed with diabetes.

In the past few days, I learned of two more children lost….and countless others since my own daughter was diagnosed in 2005.

Why does this happen?

I don’t know…but I do know that many of these families sought medical attention and were told their child had “a virus” or “the flu”.  In other words, many of these deaths could have been prevented – if only someone had screened them in time.

A simple finger poke and/or urine dip upon presentation — as in…right off the bat, stat, pronto. TYPE 1 DIABETES RULED OUT IMMEDIATELY — that’s all it would have taken.

Am I suggesting that people be screened whenever they seek help for any (or all) of the symptoms of Type 1 Diabetes, no matter how vague they may seem?

• Thirst (dehydration)• Frequent urination • Blurry vision• Stomach pain • Increased hunger • Nausea • Drowsiness, lethargy, exhaustion • Confusion • Sweating • Fruity, sweet, or wine-like odor on breath • Vomiting • Inability to concentrate • Weight loss 

Yes.  I am.

Does it sound absurd to screen every person who complains of vomiting or generally feeling more tired than usual?

I don’t really care.

I feel it’s absurd that people continue to DIE because they aren’t being diagnosed with Type 1 Diabetes in time.

No matter who you are…LEARN THE SYMPTOMS, and insist on a screening if you notice them…PERIOD.

A couple months before my daughter was diagnosed, she was seen in an ER for vomiting. She had no fever, and her fasting venous glucose level was 128mg/dL. (Which is actually diagnostic according to the American Diabetes Association 2013 Standards of Care.) I mentioned to the ER doctor that her BG seemed a bit high to me, and was told it was a normal number that shouldn’t concern me.

Three weeks before my daughter was diagnosed, I discussed her symptoms (frequent urination/excessive thirst) at her 2 year well visit. The doctor told me there didn’t seem to be anything that warranted further investigation.

The day before her diagnosis, my husband described my daughter’s symptoms and voiced concern with a second pediatrician in the practice. She told him we should watch her through the night, and have her seen the next day if she didn’t improve.

On July 25, 2005 my daughter was flown to a PICU, semi-conscious in DKA, with cerebral edema.

We were merely a few hours away from the same devastating outcome, and there had been at least three opportunities to address the situation before things got as bad as they were.

Absurd indeed.

In The Nick of Time.

Fatigue
Dry mouth.
Frequent urination.
Thirsty.
Itchy spots.
Abdominal pain.
Vomiting.
Headache.
Blurred vision.
Increased respiration rate.
Weakness.
Worsening abdominal pain.
More urination.
More vomiting.
More pain.
Terribly thirsty.
Tired.
Worsening weakness.
More vomiting.
Unable to move.
Faster respiratory rate.
Excruciating abdominal pain.
Can’t focus.
Abdominal distention.
Gasping for air.
Worse headache.
Hurts to breath.
Worsening thirst.
Generalized swelling.
More swelling.
Eye swell closed.
Can’t see.
Shallow, labored respirations.
Still thirsty.
Urinary incontinence.
Pain.
Can’t think.
Pain.
Thirst.
Air.
Weak.
Pain.
Head too heavy to lift.
Awake.
Confused.
Asleep.
Awake.
Asleep.
Coma.
Seizure.
Death.

Diabetic Ketone Acidosis (DKA).  Inevitably this is what will happen if your body doesn’t produce insulin and you are unable to access medical intervention in time.  It can happen very slowly or things can go downhill very quickly.  Suffering is always part of process, and the end result is NEVER survival.

When Sugar was diagnosed, she was very close to the end of the list…fortunately, we were able to get a diagnosis, an ambulance, and an insulin infusion in the nick of time.

Sadly, that isn’t the case for many families more often than we’d like to believe.  Somewhere today a child will succumb to Type 1 Diabetes because their family cannot access the insulin he or she needs to survive.

Please pray for this child’s comfort….the broken hearted family….the turmoil that will be left behind.  Pray for the situation.  Pray that someone, somewhere, somehow can get insulin to these innocent children in time.  Pray that they’ll be able to continue accessing it in order to keep their child alive.

Say BIG PRAYERS.  It’s a BIG PROBLEM.

And then, please pray for Candy Hearts and the journey that begins unfolding on

2/14/11.

CLICK HERE TO LEARN MORE AND HELP SAVE THE LIFE OF A CHILD TODAY!
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