Candy Hearts Blog

It's a sweet adventure full of gluten free goodies!

Candy Hearts Blog - It's a sweet adventure full of gluten free goodies!

“I was BIONIC.”

Dec 6 2014

 

Those were her last words as she stepped away from the podium.

We were talking about her experience wearing The Bionic Pancreas for a conference event with our local ADA chapter, and I had to catch my breath before continuing.

Truth be told, I stumbled through the slides, fighting back tears (unsuccessfully, might I add) the entire time.

I can’t help it.

I cry.

Type 1 Diabetes reached inside my chest and squeezed my (candy) heart so hard that nothing but pain, fear, and anxiety could be found running through my veins in the immediate aftermath of her diagnosis. Eventually I got myself on track, but the emotions of the (almost) 10 years since that time continue to range from low to high — practically at the same rate as her glucose levels.

Yes. Sometimes I still cry.

We began our presentation by sharing the camp video recap of The Bionic Pancreas 2013 Summer Camp Study. The video is about 5 minutes long, and I stood off to the side while waiting for it to finish. While standing there, I looked around the room, and realized it was the first time many of the people attending would hear the words “Bionic Pancreas”.

I watched as looks of skepticism turned to interest and faces of exhaustion turned to hope. Fathers inched forward, focusing on every word. Mothers stared at the screen in disbelief. Adults around the room were taking it in, while children and teenagers watched in silent awe. By the end of the video, many tears were falling, and I knew I was in good company.

For the next 40 minutes, we went through our journey to the 2014 Summer Camp Study — from the first time I heard Ed Damiano speak at Friends For Life 2012 to approaching him with my friend, Misty, at the end of 2013. We talked about where diabetes management has been…how Sugar has managed her diabetes with technology…and where it’s all going.

Sugar did a fantastic job. I was nervous that she would freeze in front of the crowd, but speaking about her experience seemed to come naturally for her. She fielded questions with confidence, smiled, and enjoyed the opportunity to share her story.

Thankfully, Sara came to visit for the weekend, and had a clue how to help me stumble through the technological side of things. She had planned to video tape a couple parts, but ended up working behind the scenes, clicking through slides instead. (THANK YOU!!!!) I’m pretty sure I would have cried harder if I had to figure all that stuff out on my own.

Sweet Tink and Tiara sat in the front row, beaming. Without their hard work helping us fundraise, Sugar wouldn’t have made it to camp. Tiara made a little video…check out those mad 8-year-old camera skills…

“I was BIONIC.”

In that moment, my (candy) heart soared.

Category: bionic pancreas
  • Colleen says:

    Love this! Gives me goosebumps!

    December 10, 2014 at 4:19 pm
  • Sara says:

    You both did such an awesome job! One with a bit more crying than the other 🙂

    I think the crowd of people waiting to talk to you after was a good indication of your presentation skills!

    December 10, 2014 at 7:37 pm
  • Misty says:

    Awww! I’m sure you both did amazing! So wish I could’ve been there to hear it 🙂

    December 11, 2014 at 6:08 am
  • Melissa McCourt says:

    Wonderful presentation! Amazing girl! Makes me cry thinking of all the worries theses little ones carry. Can’t wait until my son can also GO BIONIC!

    December 22, 2014 at 5:36 am
  • Kendall says:

    I got chills for the last few sentences. I know the worries first hand and I have had type 1 for almost 20 years. Until there is a cure, technology is helping us live healthier lives. Thanks for sharing your story.

    January 17, 2015 at 10:13 pm
  • Gil DePaula says:

    It’s great to see that other organizations/companies besides Pancreum (www.pancreum.com) are also working on a dual-hormone (insulin & glucagon) bionic (a.k.a. artificial) pancreas.

    December 9, 2015 at 4:38 pm

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